<www.xs4all.nl/~boeck>
There is also a Dutch language-version available !
Some information that you can find on these "Sarcoidosis/Boeck" pages:
With thanks to Maria Leffley for the help !
Maybe you have an interesting page to publish here or remarks to tell us?
E-mail: boeck@xs4all.nl
"The Sarcoidosis / Boeck site is ment for Sarcoidosis patients and anybody with an interest in the disease Sarcoidosis.
It doesn't cost anything just a little of your time and interest.
This free website account is sponsored by Xs4all, an Internet provider throughout Holland.
"Punkie" drawings were provided by Louise van Goethem
and we may use them.
Sadly she past away on 26 november 2010, this way she will be with us in a way.
The information on this page is provided by those interested in the disease.
A Sarcoïdose Belangenvereniging Nederland, SBN, is in office here in Holland .
> Per 1 March 2011
> Postbus 18
> 3860 AA Nijkerk
> Tel: 033-24 71 467
> email: info@sarcoidose.nl
For the URL of their website, see the linkpage !
And an interest group in Belgium.
Vereniging voor Sarcoïdosepatiënten België
> secretariaat :
> p/a U.Z. Gasthuisberg
> Herestraat 49
> 3000 Leuven
> België
> e-mail: hilde.santermans@uz.kuleuven.ac.be.
------We are curious if people are interested in a website for and by people with the disease Sarcoidosis or those who have an interest in the disease. Feel free to send us an e-mail at : boeck@xs4all.nl !
------Again such a nasty disease, this Betty Boop disease or whatsoever ? Yes, when you don't inform yourself, it is!
Sarcoidosis is a chronic disease with no know origin and with more information the greater your awareness, of the sometimes big problems with this disease, can become.
See for the different names for Sarcoidosis, the official Latin name, this link Who named it?
from our link page "fellow" sites.
Sarcoidosis might be an systemic disorder, or ......., nowbody knows for sure.
The symptoms of the disease can attack
any organ of the body in any location with so called granulomas. These symptoms
are the ones doctors sometimes will try to overcome when they trouble you. The
disease itself (how and why the granulomas are formed) can't be cured yet. The
cause is unknown. For some reason the body's immune system acts as if it needs
to fight an invader, for longer periods.
You can't get it from or give it to others.
Anyone can have the disease, sometimes unknowingly, even without doctors finding
proof for the existence of the disease, in your body and/or in many forms.
Fatique, in sometimes extreem porprotions, is a common symptom to all patients.
Through the media we know that some prominent people have/had Sarcoidosis, like our Dutch crownprince Willem-Alexander, and on 12-08-2008 Bernie Mac an American actor/comedian (Ocean's Eleven) died with this disease. Also the famous English writer Shakespeare is known to have sufferd from Sarco.
In some cases the disease can be fatal (a minor percentage of the cases).
Nobody will be fully cured from this disease, sometimes nature itself takes
care of a relapse (remission) for some time. In this time you won't experience
symptoms and can last a lifetime, when you are lucky enough. Most of the diagnosed people will go into remisson within two years. After this period the disease has a chronic nature.
Sarcoidosis sometimes mimics other diseases and vice versa, so it is hard to
trace.
Genetics seem to be playing a role, in some families it can occur more often.
Sarcoïdosis is (still) a medical mystery !
Not much news will be found on this site. Since the discovery of the disease in 1877 since not much has changed in the research for the cause of this disease, unfortunately.
E-mail: boeck@xs4all.nl
Some information that you can find on these "Sarcoidosis/Boeck" pages:
With thanks to Maria Leffley for the help !
Maybe you have an interesting page to publish here or remarks to tell us?
E-mail: boeck@xs4all.nl